The Aussie Pinball Arcade
Aussie Pinball Forums => General Chat - Non Pinball/coin-opp Discussion => Topic started by: swinks on July 28, 2014, 06:41:10 AM
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those that have read many of my posts probably worked out I am not you typical bloke - wear my heart on my sleeve and probably open up a bit too much - no point changing now. I don't drink drink, smoke or go to the pub and just a family man that enjoys pinball.
this morning for me is a massive one as luck would have it the last 12 months have been shit for my family and myself and many times I have questioned "does pinball matter" I have thought long and hard and I suppose the material things don't they are fun but I have learnt alot when it comes to family pinball rates very low due to some of the personal things I shared and others I haven't. What pinball has brought me is a few new mates through these forums that I was least expecting.
This morning is massive and scary as my 5 yr old daughter was rushed to hospital 3 1/2 days ago with a mystery illness and at times I wonder if the hospital actually know what they are doing. This morning she is finally being put in a MRI if she settles as yesterday they tried sedating her for a minor surgical procedure but she fought it. She needs to be calm so that they can find a potential disease that could be fatal and too be honest I am scared shitless. What started as a cold went to a virus in her hips in a week that now has her in so much pain we can't move her and now is quite possibly advanced to a bacterial infection that is possibly starting to eat at the bone lining or possible the bones in her hips which can cause irreversible damage. What is worse they talk of blood markers with figures of 5-200 - 5 being a healthly person to 200 being fatal and she has climbed to the 90's in 3 days. The larger danger and this it is me probably worrying me (as I tend to look at the worse given the various things of the last year) about my precious little girl is if if this illness goes from septic in one location to sepsis which then it could then float around her body and be fatal.
sorry for the rant but feeling quite lonely and scared.
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This year has been full of highs and lows for me
Do pinball machines matter? Nup
But I have meet some great guys through this hobby , and for that Iam happy
It is good to have a hobby. You can use it as a release when you need a distraction from life
I wish your girl a swift recovery.
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That's just horrible.
Hang in there.
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You have our thoughts and prayer for your little one.
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All the best Jady hang in there mate my thoughts are with you and your family at this time.
Peter
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We are thinking of you and your family in this time of need.
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You have our thoughts and prayer for your little one.
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Hang in there Swinksy. Things have a way of sorting themselves out and I'm sure your daughter will be fine in time.
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Sorry to hear of yet more bad luck for you and your family Jady .
Its awful when your kids are young and get sick , especially when you don't yet know exactly what is wrong with her .
I sure hope that you get some answers soon and that she recovers well
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Hang in there, you know I'll be hoping the best for you. Just another test mate.
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Ohhh man, that is horrible for you and your family to have to deal with.
I hope that your little treasure gets well soon and has the speediest of recoveries. My families thoughts are with yours mate, all the best.
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As always mate you guys know that you are in our thoughts and prayers. All the best and let us know if there is anything we can do for you.
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My thoughts are with you and your family Jady. It a truly awful thing when your kids are ill. I wish her a full and speedy recovery.
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Swinksy, Thoughts and prayers for your gorgeous girl and family. God bless her mate!
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Nothing material matters in these situations. Our thoughts are with you in these rough times.
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All the best to your little girl and your family Jady, stay positive.
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Thoughts are with you Jady. All the best for your whole family
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I hope everything goes well for your little girl Jady. Try to keep your chip up mate. All the best to you and your family.
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All the best, Jady. Thoughts are with you and your family.
Adam.
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Thats terrible. Nothing is more important than family. I wish your daughter a speedy recovery.
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I hope your little girl has a speedy recovery, all the best to you and your family.
Peach
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Best wishes for your daughter and your family,
i cant start to image the pain you guys are going through.
I believe that pinball has helped me cope this year after being diagnosed with Meniere's disease,
I cant play pinball atm but I love to talk about pinball,it helps me get through the tough days,
pinball its more than just a game.
good luck to all aussie pinball followers.
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You were alert and got your daughter to the hospital early, mate. She is in good hands.
Best healthcare in the world right here.
Hang in there.
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Swinks, having never met you mate i can only think positive thoughts for your little girl , hope it all works out for you both , stay positive mate especially around her , take it from me kids are very perceptive . andrew
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Swinks,
Very, very sorry to hear this. You are not alone, we are all thinking of you and your little girl. All the best.
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Firstly thanks for the support and kind words, turned into a big blubbering mess while reading the messages and thinking of my daughter and son for that matter as hardly seen him in days.
huge day doing MRI & CT scans mean while she is in agony when moved - poor little one.
They have narrowed it down to a septic arthritis in the hip and pelvis which means strong IV anti-biotics for six bloody weeks (in hospital). To top it off there are some other masses but not clear from the MRI and the CT was done 2 hours ago to try identify some other issues - appendix, bowel and the bloody C word Lukemia (Cancer). The septic arthritis is in the bones so not good and potential permanent damage, poor little thing, just breaks my heart (such a gorgeous loving soul).
Thanks for the support and kind words, it heaps…..
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Hold in there Jady. kids can deal with these things better than us. we upset them by being sad around them. I know its hard but try not to show her how much your hurting. Take something in she loves doing and do it with her mate.
Im not saying cancer isnt bad, but its not like it used to be, cheamo is almost tailor made these days and a lot more successful.
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From my own personal experience - The Doctors will give you the worst possible news early on during the diagnosis. They have to prepare you for all the different scenarios. That way if it does go down that path, you are prepared. Just hang in there and wait until they have narrowed it down and then have a treatment plan. Early days means a lot of guesswork and tests. Just keep her comfortable and happy and things have a way of sorting themselves out.
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Fingers are crossed for your little girl mate you sure have had a shitty year hang in there mate good things to come
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Good luck Swinks and your whole family. I can empathise as one of my sons became type 1 diabetic about 5 years back. Sometimes life is a bitch. All ya can do is hang in there for the people who matter most.
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My thoughts are with you Jady, sorry to hear mate and i hope for a speedy recovery for your beautiful daughter.
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Hey Jady,
Hope some good news isn't too far away.
Andy
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Im heading out to Gatesheat this sat with my kids Jady. Their 6 &nearly 8 I can bring them in to see her if you want. It might cheer her up a bit. I know you dont turn on your mobile for days you tech savy guy lol. so call me and let me know. I take it your at the Mater by the pic, I spent a lot of time there myself when I had hodgkins. She is in very good hands mate.
Bren
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Hang in there swinks. Wishing your little one a speedy recovery, and happier times ahead.
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Sorry to hear that mate. I hope all goes well for your daughter. It is always very scary when you see your kids in such a vulnerable position. Best wishes for your family, you sure have had a tough time of late
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been at the hospital for a 36 hr stint and home now for a hopeful slightly better sleep ready for tomorrow.
The good news is that the paediatric team gave the orthopaedic a kick up the arse and said this should of been faster actioning within 2 days not 6 now and they have taken over yesterday after my wife and I stirred up a hornets nest. They quickly did lots of scans and believe that they have narrowed done to septic arthritis of the hip and leg bone that goes in the hip. They started heavy duty anti-biotics and she goes into surgery tomorrow midday for relieving of pressure and a wash out and hopefully collect a living sample of the crap in there to determine what bug is causing the issue, then traction and heavy anti-biotics for 6-8 weeks tailor made as the paediatric team have got the infectious disease team involved and will tailor the antibiotics to hopefully pull her out of trouble. Still many unknowns and risks but we have no choice now and will take up to 3 months to determine any permanent damage to her bones.
thanks for the kind words and offer for visits but will hold off on any visitors for a little while.
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Firstly I hope that your daughter pulls through and everything turns out ok. I thought I was having a bad year but at least my kids are healthy. This year I have had to sell all of my pinball machines ( I had 15) due to a failed business. To quote Rudy "its only pinball"
Chin up things have to get better at some point.
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Just another supportive post
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a little update:
Kalarna is safe after the operation with the pressure released from the hip and she now is a little more comfortable though still in traction until Monday at this stage, now comes the identification of the bacteria and matching the right anti-biotics to make her well. As for the any bone damage, we won't know for a little while after 6 weeks of meds and probably some more scans.
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Good to hear she's come through the operation well Jady, kids are more resiliant than we oftern give them credit for and least now the process has started and progress is being made. Take care mate and all the best to your little one, I hope all news is positive and she gets back to good heath soon.
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I hope your daughter makes a full recovery.
Sometimes life feels like a rollercoaster, and all you can do is hold on and ride it out.
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Really sorry to hear about your daughter Jady. I'm sure you'll pull through as a family.
My son was diagnosed with cancer back in 2004 when he was 1 and we spent the next 2 years in hospital in Sydney. All good now and but it was a virtual nightmare to go through so I understand a bit of your situation. Any time you need to chat I can always lend an ear.
All the best mate
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We are continuing to think of you and your family in these difficult times and were happy to hear that the operation went well.
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great news mate, tell her all the boys at aussiepin are thinking of her
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Great to hear she isnt in as much pain. hopefully all news is good from here on. ^^^
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All the best for the little trooper, unfortunately life throws you these curve balls and it isn't always fair, but I'm sure she will kick this in the arse and bounce back.
Best wishes, Shane.
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Good News - Hopefully the worst part is now behind your family and life will return to normal after the antibiotics. ^^^
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well we got her home with what was supposed to be community nurse care but 3 hrs later they called and stated they don't do kids so I have been back to the hospital to learn how to administer meds via a PICC line - a little scary but pretty sure I have it worked out.
we still don't know what illness we are dealing with as remains a mystery but the anti-biotics appear to be helping. It also will be a while until we find out if she suffered any permanent damage to her rhs hip so time will tell there.
thanks for everyones kind words and support as it is very much appreciated.
cheers guys ^^^
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Good and not so good news Jady. hope she gets better. I wish u all the best, I really hope she's in the clear soon